Living With Autism - Help Page

CARD would like to provide families the following sources of useful infomation to help make 'Living with Autism' a little easier:

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* Some organisations have a web presence, please click the links provided for more infomation. Contact telephone numbers and addresses are provided for any organisations not currently on the web.

*If you do not find the infomation or organisation you are looking for please visit our Useful Links page. Or feel free to email us for further infomation p.bolton@iop.kcl.ac.uk

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  • The Gabbitas Guide to Schools for Special Needs

Gabbitas Educational Consultants

126-130 Regent Street, London W1R 6EE

Tel: 020 7734 0161

Fax: 020 7437 1764

e-mail: market@gabbitas.co.uk

website: www.gabbitas.co.uk 

  • The Benefit Enquiry Line

Freephone 0800 882200 

  • The Disability Alliance Rights Advice Line

Tel: 020 7247 8763  (Minicom available) 

  • The National Autistic Society

393 City Road, London EC1V 1NG, Tel: Switchboard – 020 7833 2299

Information, advice and support, Tel: 0845 070 4004

e-mail: nas@nas.org.uk

Website: www.oneworld.org/autism_uk

 

Runs education and adult centres, publishes books and leaflets, has a library available to parents and researchers, runs an autism helpline for parents, carers and those with autism spectrum disorders, organises conference and training programmes, offers specialist diagnosis and assessment services, encourages research, supports local groups and families, runs Prospects – a supported employment service for adults with autism spectrum disorders.

Parent to parent telephone support: 0800 9 520 520.

Parents can call at any time and leave a message on the freephone number and a parent volunteer will call them back. Because volunteers are all parents themselves, they are able to talk at various times, including evenings and weekends. (Information taken from NAS leaflet.)

  • OAASIS

Office for Advice, Assistance, Support and Information on Special Needs

(Set up by the Hesley Group)

Hesley Group Head Office, The Coach House, Hesley Hall, Tickhill, Doncaster DN11 9HH. Tel: 01302 866906

Hesley Group Southern Office, Brock House, Grigg Lane, Brockenhurst, Hampshire, SO42 7RE. Tel: 01590 624484.

Website: http://www.hesleygroup.co.uk

OAASIS offers information on various learning difficulties, advice on assessment and statementing, prospectuses of all 9 Hesley Group special schools, college and adult provision, publications – quick, easy reference guides to many learning disorders, advisory days for parents.

(Information taken from OAASIS leaflet.)

  • Contact a Family

170 Tottenham Court Road, London W1P 0HA

Tel: 020 7383 3555

Website: www.cafamily.org.uk

Support for families who care for children with disabilities and special needs – can advise on statementing, leisure activities, holiday schemes, playgroups, benefits, 

  • MENCAP

123 Golden Lane, London EC1Y 0RT

Tel: 020 7454 0454 

  • The National Portage Association

Tel: 01935 471 641

Practical step-by-step programmes and support for parents to help children achieve specific tasks/overcome specific problems (eg; toilet training, feeding, dressing, etc). NB – Not every area in the UK will have Portage. You will need to contact the National Portage Association to find out if a Portage scheme operates in your area.

  • Afasic

69-85 Old Street

London EC1V 9HX

Tel: 020 7841 8900

Fax: 020 7841 8901

Email: joannae@afasic.org.uk

 

A UK charity representing children and young adults with communication impairments, working for their inclusion in society and supporting their parents and carers. Afasic offers advice, support, information, publications, activity holidays, training. 

  • Handicapped Adventure Playground Association Ltd (HAPA)

Hapa runs five adventure playgrounds in London for children and young people with disabilities and special educational needs. All are open during school holidays for individual children/groups and for siblings and friends. Various after-school schemes/clubs are offered and playgrounds also open on Saturdays.

Hapa, Pryor’s Bank,

Bishop’s Park

London SW6 3LA

National Information Line: 020 7731 1435  

(Information taken from NAS Resource List)

  • Holiday Care Service

Provides free information on holidays for people with special needs. The Service also produces a booklet on holiday and short break accommodation, suitable for carers, either travelling alone or with a person with a disability.

Holiday Care Service

2nd Floor, Imperial Buildings,

Victoria Road, Horley,

Surrey RH6 7PZ

Tel: 01293 774535

Fax: 01293 784647  

(Information taken from NAS Resource List)

  • Riding for the Disabled Association

Has many groups throughout the country. RDA produces a list of National Holidays annually in February.

RDA,

Avenue ‘R’, National Agricultural Centre,

Kenilworth,

Warwickshire CV8 2LY

Tel: 01203 696510 

(Information taken from NAS Resource List)

  • IPSEA (Independent Panel for Special Educational Advice)

A registered charity providing advice on LEA’s legal duties towards children with special educational needs, free second professional opinions for parents who disagree with an LEA’s assessment of their child’s special educational needs, and free representation at the Special Needs tribunal when parents want to appeal against an LEA decision.

Advice line: 0800 0184016 or 01394 382814.

For Tribunal appeals only: 01394 384711

General inquiries: 01394 380518

Website: http:/www.ipsea.org.uk/

(Information taken from OAASIS information sheet)

 

  • ACE (Advisory Centre for Education)

Offers advice and publishes handbooks including the ACE Special Educational Handbook; Tribunal Toolkit: Going to the SEN Tribunal; Appealing for a School, and various summaries of the law.

Tel: 020 7354 8321 

(Information taken from OAASIS information sheet)

  • Asperger United

Published four times a year – a newsletter written by and for people with Asperger Syndrome. The newsletter is suitable for adolescents and adults with autism and Asperger syndrome. Parents and professionals are, however, welcome to subscribe.

For further details contact The National Autistic Society, tel: 020 7833 2299. 

  • On-line Asperger Syndrome Information Service (OASIS – an American organisation) website. A great deal of useful information can be found from this site, much of it for teachers.

http://www.udel.edu/bkirby/asperger/

 

  • The TEACCH website is worth visiting and in particular its article Structured Teaching.

http://www.unc.edu/depts/teacch/structur.htm. 

 

  • The Center for the Study of Autism has several good papers on childhood autism, theory of mind.

http://www.autism.org/contents.html 

 

  • Horizon is a joint UK/European employment initiative supporting training, vocational guidance, counselling and job creation schemes for people with a learning disability. More information from the DfEE Support Unit (Tel: 0121 616 3660 or 3661).

Website: http://www.employment.ecotec.co.uk

 

  • Prospects is a supported employment scheme for people with autism/Asperger syndrome set up by the National Autistic Society, 393 City Road, London EC1V 1NE, Tel: 0207 903 3597 
  • SKILL – the National Bureau for Students with Disabilities, helps with further and higher education and employment throughout the UK. 336 Brixton Road, London SW9 7AA, Tel: 0207 274 0565 
  • Golden Lane Housing

(Registered charity established by The Royal Society Mencap in 1998)

Run Shared Ownership scheme and Secure Futures Scheme. Golden Lane Housing, Mencap, London EC1B 1AA

Website: www.glh.org.uk  

  • For information about the Camphill Communities, contact:

The Association of Camphill Communities

Gawain House, 56 Welham Road, Norton Malton,

North Yorkshire YO17 9DP

Tel: 01653 694 197

Fax: 01653 600 001

e-mail: info@camphill.org.uk

website: www.camphill.org.uk

 

  • Clinical research project at the Maudsley Hospital

The Autism and Related Disorders Team at the Michael Rutter Centre, Maudlsey Hospital, is currently running a research project looking at the efficacy of interventions in reducing the frequency and/or intensity of bullying for boys with ASD in secondary mainstream school.

 

If you are the parent of a boy with Asperger’s or high-functioning autism between the age of 11 and 16yrs who has experienced bullying at school and would like to take part, please contact Jenny Ronayne on 020 7919 2535 for more information or email on jenny.ronayne@slam.nhs.uk